Discharge to Home and Chronic Illness Care Pilot
This trial is active, not recruiting.
|Condition||solid organ transplant|
|Treatment||myfami ipad application|
|Sponsor||Medical College of Wisconsin|
|Collaborator||Children's Research Institute|
|Start date||June 2014|
|End date||October 2022|
|Trial size||20 participants|
|Trial identifier||NCT02165423, CHW 14/66|
The purpose of this study is to address a gap in knowledge needed for care of children with solid organ transplantation (SOT) and their parents by combining mHealth technology with an individualized family centered self-management intervention (referred to as myFAMI). This study is critical to the increased understanding of hospital to home transition and family management at home with the potential to transform the way clinicians approach the care of complex chronic illness children and families.
|Intervention model||single group assignment|
|Primary purpose||health services research|
Evaluate the effectiveness of myFAMI on 30-day post-discharge outcomes.
time frame: 30 days following enrollment
Examine the acceptability of myFAMI:
time frame: Enrollment plus 30 days
All participants from 18 years up to 90 years old.
- parent's child has undergone a heart, kidney, or liver transplant and is being discharged home from the hospital
- the parent is English speaking (to date the tools being used have been validated for English participants only)
- parent is 18 years of age or older
- patient is 17 years of age and younger.
- presence of significant communication or cognitive impairment on the part of the parent that would preclude completion of questionnaires based on self-report
- parent and child has experienced the discharge to home transition from a previous transplant.
|Official title||Discharge to Home and Chronic Illness Care Pilot|
|Principal investigator||Stacee Lerret, PhD|
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