Adolescent and Young Adult Cancer Survivors: Identity Development
This trial is active, not recruiting.
|Treatments||interview, focus groups, questionnaire|
|Sponsor||Memorial Sloan Kettering Cancer Center|
|Start date||January 2009|
|End date||January 2016|
|Trial size||300 participants|
|Trial identifier||NCT00832325, 09-001|
The purpose of this study is to better understand how the illness has affected the identity and what needs the survivor may have. We hope that this information will help us provide better care to future adolescent and young adult cancer survivors.
Conduct a comprehensive qualitative assessment through individual interviews and focus groups of identity development, peer and family relationships, and psychosocial concerns among survivors diagnosed during adolescence.
time frame: 3 years
Conduct a prospective longitudinal assessment of identity development and peer and family relationships among survivors diagnosed during adolescence.
time frame: 3 years
Male or female participants from 15 years up to 25 years old.
- Current age greater than and including 15 and up to and including 25 years of age at time of consent
- Diagnosis of a first cancer > or = to 14 and up to and including 21 years of age
- At least 6 months post-treatment according to participant's self-report.
- Able to provide informed consent (or parent or legal guardian consent and participant assent for those participants under 18 years of age)
- Able to speak English. This inclusion criterion is included because study assessments were designed and validated in English and many of them are not currently available in other languages. Translation of questionnaires into other languages would require reestablishing the reliability and validity of these measures. Therefore, participants must be able to communicate in English to complete the assessments.
- Will exclude survivors with severe cognitive impairment that precludes them from being able to give information consent and/or complete the questionnaires.
|Official title||Adolescent and Young Adult Cancer Survivors: Identity Development|
|Principal investigator||Jennifer Ford, PhD|
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