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Save for later is a new feature that gives you a place to store posts that you might want to refer back to.
I suspect what the doctor says and what the patient hears are often two very different things.
Today is the day they said I wouldn't live to see. Today is my 2nd cancerversary. I'm two now.
I try my best to live in and enjoy the moment. Sometimes even living in the moment gets scary, but it is easier than living in fear of the future.
I just wanted to reach out and love to be able to talk to somebody that's been through a similar situation.
One of the biggest ways our communities grow is through our members spreading the word.
Mothers are very special people and no matter how long they are in our lives - it's not long enough.
smart patients and smart physicians definitely help the odds
Journey or quest works for me. I'm an avid reader, story and metaphor person. To be called forth on a journey begins a fairytale or quest narrative.
You have chosen such a tough profession with some terribly hard moments. And it sounds like you are meant for this work-taking it to heart in addition to learning the science.
You already have the makings of a wonderful doctor because you are already taking into account your patients' feelings.
I feel like it's my opportunity to advocate for all the families that are seeing changes with the full knowledge that at any point it could be us.
when I'm helping to ease the suffering of others with supportive messages or informative resources, I move beyond my personal distress.
Keep enough oil to light your own lamp. If you are going to take care of patients for 3 or 4 decades don't take every loss home with you.
You are on the right path Doc!! Thank You for caring it means a lot
I am impressed that you are asking us this question, no doubt you will receive a lot of different answers. We all have different needs.
You have to keep telling yourself "information is power."
As a caregiver, I found it helpful to focus on the immediate needs of the person who is ill. And I tried to just think "one day at a time."
Chronic disease care is tough stuff.
I've found that the support of people who can relate to and understand you, is some of the best therapy
Offer hope. Promise to keep pain away. Ask what we want.
It really is important to have something to take home that we can read and research as our minds adjust.
A warning to people on any medication. Double check not only the prescription label, but also the manufacturer's label.
I have one thing to say to all of the Care Givers: THANK YOU
This is so amazing how one post can end up as a nationwide effort to produce positive changes.
Please stay connected and I'm certain you will find advice that is helpful. We are all rooting for you!
I remember that first year feeling like my body was "weird", how things felt had changed, and I could not "read" its signals as before.
Whine and cry to other caregivers (us) for we are the ones who understand
What would you put on a "Need To Know and Understand" list when it comes to insurance for our kids as they begin to transition and transfer to navigating their own healthcare?
Went to a virtual poetry reading this afternoon... it was delightful, and my spirits are up, and I feel better and more energetic. Had not been on this in months... Not all remedies are pills!
Most steps were taken one day at a time without knowing what the next step would be. Each decision was made with the best imperfect information
Equally important, finding out how the patiently really wants to live out the rest of her life, and giving her options to achieve that.
I believe oncologists should encourage second opinions. I have heard so many people say they didn't get a second opinion because they didn't want to hurt the Dr's feelings.
Think of your gentle kindness as a gift to us instead of feeling you've failed us because the cure you'd surely use isn't there to offer yet.
Tell the truth slowly and quietly in the short version. See if we want and need more.
He said, "We will get through this together." I knew he meant he was part of my team.
We often combine appointments with infusions. It's a day off of work and a day off of school and we drive to one location for an infusion.
Can I remind everyone to start and maintain a health profile on their avatars which is a great feature of Smart Patients. It saves having to introduce yourselves when posting
We have all felt "in" over our heads in trying to make a quality decision for our kids but know you are doing the best you can with the knowledge you have.
May this be the year that our current treatments are successful and become our last treatment for Ovarian Cancer.
Take someone along to that meeting if possible, because it will be a lot of information to absorb, thrown at you way too fast.
For anyone out there who's still having these thoughts, I want you to know that you're not alone, that many of us here have been where you are.
I wish you good luck, smooth seas and fair winds, as the sailors say, as you travel this path.
Be kind to you dear momma, you deserve it. Your child deserves that his mother loves herself. Hugs to you!
Why do mutated genes become good markers for cancer detection? Which genes can guide treatment choices?
by reaching out to SPs these groups are trying to better understand the decision making process that patients use.
Professional and kind can be combined successfully with practice by use of tone and candice.
My life has taught me that the healthier we are prior to becoming ill, the faster we will recover and the healthier we will be after a diagnosis.
I have wonderful doctors who take the time to explain everything and never rush me. They let me ask all of my questions and even laugh.
I have learned so much over the last year, especially that I needed to educate myself to be my own best advocate. Smart Patients played a major role in my learning!
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